#EveryoneDeservesCare: Vicki's Story

Ultimately, Vicki asks for her situation to not go unnoticed and for those in charge to address the problems within the current care system and workforce crisis. “I’d be fine if I got the help I was supposed to get...they need to listen to what I want, what I need,”... Read more...

November 30, 2022Read More

#EveryoneDeservesCare: Maria's Story

I have been my own advocate, as well as an advocate for individuals with disabilities across the nation, my entire life. If these programs were not in place, individuals with disabilities would be forced into institutions with no chance of ever leading a fulfilling life. Read more...

November 17, 2022Read More

#EveryoneDeservesCare: Marcus and Cindy

Cindy is defeated and depressed and feels that she has been put in a room to die, all because of a lack of home health aides and a lack of aides in the nursing home itself. I think the entire system for elderly care is broken. Read more...

November 2, 2022Read More

#EveryoneDeservesCare: Allie's Perspective

Despite the challenges of the direct care work crisis, Allie feels lucky: she recognizes her privilege compared to others with less support, access, or income. Read more...

October 12, 2022Read More

#EveryoneDeservesCare: Allie's Story

Domestic Violence Survivors with disabilities face enormous hurdles to access care. Read more...

October 5, 2022Read More

#EveryoneDeservesCare: Julie's Story

“The staffing crisis didn’t stop, it’s worse now that we’re not in service.” Read more...

September 28, 2022Read More

#EveryoneDeservesCare: BC's story

“My goal was for him to live independently, be employed, and have community connections... And that has not worked out very well. It’s been a very long road.” Read more...

September 21, 2022Read More

#EveryoneDeservesCare: Latisha's Story

Today, Latisha receives daily living, transportation, and financial support from her direct care workers. In order to receive all the care she needs, there must be available staff that can assist her. She enjoys living independently because it offers her the freedom to go where she wants. Moreover, it allows... Read more...

September 1, 2022Read More

#EveryoneDeservesCare: Luke and Heather

Even if Luke was able to get his 5 hours of care consistently covered, Heather feels it wouldn’t be enough. Heather’s relentless advocacy has increased Luke’s care to 10 hours per week, but she feels frustrated that the officials who are determining what Luke needs are not the people that... Read more...

August 25, 2022Read More

#EveryoneDeservesCare: Christine's Story

Currently, she has not had an aide since March 2022. “Basically, my mom has been my aide… and it’s really hard on her because she is in her sixties. It is not easy for her to do this stuff and she basically has to do it all by herself,” notes Christine. Read more...

August 15, 2022Read More

#EveryoneDeservesCare: Cara and Corey

Cara wishes that people understood the impact of having direct care workers coming and going on the people they are caring for as well as their families. She describes it as a strange experience to have someone constantly in your home that you don’t know. She also highlights the impact... Read more...

August 8, 2022Read More

#EveryoneDeservesCare: JW's Story

Without intentional change, JW and others like her will continue to lose their freedom, including their ability to live independent and productive lives. JW wants to live like every other adult. “I enjoy doing what every other 35-year-old does. I just need a bit of help.” Read more...

July 27, 2022Read More

#EveryoneDeservesCare: Daniella and Roxanne

“To have a field where there are no benefits and no good compensation and to expect that people will work in that field and do a good job is a huge hindrance to both the people with disabilities and the people who want to help people with disabilities,” Read more...

July 21, 2022Read More

#EveryoneDeservesCare: LC's story

“A lot of people take for granted that they have a 26-year-old, they’re good to go, right? They can go to church. They can go to the store. They can maintain their employment. Those are luxuries for me.” Read more...

July 13, 2022Read More

#EveryoneDeservesCare: This Is Us

As you can see, my 39 years have been challenging, but none of it prepared me for the last two years. Read more...

July 6, 2022Read More

#EveryoneDeservesCare: Cynthia's Story

“It was just like a whole new world. I was on a vacation that didn’t stop." Read more...

June 29, 2022Read More

#EveryoneDeservesCare: Robert's Story

“I like to think that in a better world, not a perfect world, in a better world, I could get enough care to take care of my medical needs and still be able to work at least part time, if nothing else, from home.” Read more...

June 22, 2022Read More

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